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The Origins of Purple in Health Advocacy
Colors often carry meaning long before we notice them. In health advocacy especially, certain colors begin to feel familiar, even expected, without us ever stopping to ask where they came from. This post takes a quiet look at one of those colors—how it came to be associated with dignity and care, and why its presence today reflects a much longer history than many people realize. Purple is a color many people recognize in health and disability spaces, but few stop to ask why i
tim2658
5 minutes ago2 min read
How a Rare Condition Ended Up With a Kentucky Proclamation
Earlier this year, Kentucky issued its first-ever statewide proclamation recognizing Moebius Syndrome Awareness Day. This was also the first and only year we have ever sent out proclamation requests. Only one came back approved — and that naturally raises the question: why just one? The answer is straightforward. Moebius Syndrome Awareness Day is still not well known, especially within government offices. Some officials misunderstood the request as a commercial effort. Other
tim2658
2 days ago2 min read


Embracing Halloween: Celebrating Facial Differences While Joining in the Fun
Halloween is an exciting time brimming with creativity and joy. For many kids, it’s about dressing up in fun costumes and gathering candy...
tim2658
Sep 13, 20253 min read


Building Bridges of Acceptance: Fostering Inclusivity for People with Disabilities
In today's world, acceptance is more than just a nice idea; it is essential for the well-being of individuals with disabilities. A...
tim2658
Sep 5, 20253 min read


Understanding Moebius Syndrome
The Many Faces of Moebius Syndrome: Where information meets awareness Introduction Moebius Syndrome is a rare neurological condition that...
tim2658
Aug 25, 20253 min read


Understanding Craniofacial Acceptance Month and Its Significance for Moebius Syndrome Awareness
Craniofacial Acceptance Month shines a light on the experiences of individuals living with craniofacial conditions. This pivotal time in...
tim2658
Aug 22, 20253 min read


Discover the Amazing Resources Waiting for You at the Many Faces of Moebius Syndrome Website!
In the world of rare diseases, finding the right information and support can feel like searching for a needle in a haystack. The Many...
tim2658
Aug 4, 20253 min read


Exploring the Importance of Nonprofit Collaboration with Volunteer Organizations like Many Faces of Moebius Syndrome
In a world filled with challenges, nonprofit collaborations with volunteer organizations are becoming increasingly essential. By joining...
tim2658
Aug 4, 20253 min read


Unveiling the Hidden Advantages of Transitioning the Many Faces of Moebius Syndrome Back to All-Volunteer Leadership
In the dynamic world of nonprofit organizations, finding an effective organizational structure is crucial for success. For the Many Faces...
tim2658
Aug 3, 20253 min read


Celebrating Milestones: The Significance of Acknowledging Birthdays in Our Lives
Birthdays are more than just the passing of time; they represent personal milestones that deserve our recognition. When we acknowledge a...
tim2658
Aug 3, 20254 min read


Exploring the Significance of Volunteer Organizations Alongside Nonprofits
Volunteer organizations and nonprofits have a lot in common—they are committed to serving communities and improving lives. However,...
tim2658
Aug 3, 20254 min read


Understanding Moebius Syndrome Through a Child's Letter to Their Teacher
In today's world, fostering understanding and compassion in education is more important than ever. This is beautifully illustrated by a...
tim2658
Aug 2, 20258 min read
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