We are thrilled to launch a new series, led by Sophie, where we highlight the real experiences of people living with Moebius. ​To read our interviews scroll down. 

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Through these written interviews, we want to share their stories, perspectives, and daily lives so that people outside the community can understand more about who we are and the strength, resilience, and uniqueness of our Moebius family.

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Our goal is simple: to educate, inspire, and connect — one story at a time.

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If you are a part of our Moebius Syndrome Community and would like to be interviewed, please fill out the form below.

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