top of page

Moebius Voices:  Our Stories

💜 Moebius Stories – Straight From the Heart 💜

Each story shared here comes directly from members of our Moebius community—written in their own words, from the heart, without edits for grammar or content. These stories are powerful, honest, and deeply moving.

We invite you to take some time to read through them, connect with the voices of others who understand, and feel the strength of our shared experiences.

If you’d like to add your voice to this collection, we would be honored to share your story. Please send it to tim@mfoms.org. Together, our stories help raise awareness, inspire others, and remind us that none of us are alone. 💜

Katharine Love

Moebius Syndrome Community Member

Leslie

Moebius Syndrome Community Member

Molly

Moebius Syndrome Community Member

Ron

Moebius Syndrome Community Member

Tim Smith

Moebius Syndrome Community Member

Triton

Moebius Syndrome Community Member

Ivy Stewart

Moebius Syndrome Community Member

Maggie

Moebius Syndrome Community Member

Kelsey

Moebius Syndrome Community Member

Willem Wuebben

Moebius Syndrome Community Member

Jasmine

Moebius Syndrome Community Member

Brooklyn (revised)

Moebius Syndrome Community Member

Matt

Moebius Syndrome Community Member

Rak

Moebius Syndrome Community Member

Sandy

Moebius Syndrome Community Member

Vicky

Moebius Syndrome Community Member

Kevin & Lisa

Moebius Syndrome Community Member

Caleb

Moebius Syndrome Community Member

Lianet

Moebius Syndrome Community Member

Gavin Fouche

Moebius Syndrome Community Member

Will Harrison

Moebius Syndrome Community Member

Austin Halls

Moebius Syndrome Community Member

Tim (revised)

Moebius Syndrome Community Member

Nath

Moebius Syndrome Community Member

Ozzie

Moebius Syndrome Community Member

Russell

Moebius Syndrome Community Member

Susana

Moebius Syndrome Community Member

Brooklyn

Moebius Syndrome Community Member

Gabby

Moebius Syndrome Community Member

Chelsey

Moebius Syndrome Community Member

Christian Holmes

Moebius Syndrome Community Member

Theresa

Moebius Syndrome Community Member

©2025 by Many Faces of Moebius Syndrome. Proudly created with Wix.com. This website is dedicated to the memory of Sandy Goodwick, Hannah Jade Devine, Jessica Wallace, Grace Akers, Faith Dressel, Celest Jasmyn, Brooklyn Clarke, Brianna Brockner, Anika Marlene Kessler, Tre, David, and all of our Moebius Angels.
 

bottom of page