My Story: David Conrad

Alton, New Hampshire

I first learned I had Moebius Syndrome when I was very young. An eye doctor diagnosed me, and it became a part of my life from the start.

School wasn’t easy. I was in special education and told I would never go further academically. But I refused to let that define me. I went on to earn three college degrees and many certifications. I studied restaurant management but had to step away because of a fish allergy. I earned a hotel management degree but left after being robbed while working the desk. I also completed a general management degree and worked with disabled adults until my own health challenges — chronic migraines and other issues — forced me to stop.

These days, my focus is on improving my health. Movement is limited and I live with chronic pain, but I still hold onto what brings me joy: helping others who live with Moebius Syndrome, Poland’s Syndrome, or migraines. Knowing I can make a difference in someone’s life makes me happy.

At the same time, it makes me sad to see how hateful the world can be toward people with disabilities. That reality is discouraging, but it only makes me more determined to keep speaking up.

If I could share one message with others, it would be simple: try. Get involved. Educate yourself. Advocate for yourself and for others.

The Voice of the Moebius Syndrome Community – mfoms.org